Alex Cann

6:30am - 10:00am

Email the studio

Olivia Dean

Baby Steps

Listen Live

Fundraiser set to provide sensory equipment for Harrogate girl with rare condition

Tuesday, 2 July 2024 06:40

6-year-old Ivy Grace has a rare genetic medical condition.

A fundraising campaign launched to support a young Harrogate girl with a rare genetic condition looks set to reach its goal.

6-year-old Ivy Grace was born with a rare genetic medical condition called Propionic Acidemia and is one of only a few children diagnosed every year in the UK.

Unfortunately, this can't be cured and reduces her life expectancy.

Due to her condition, Ivy Grace requires a feeding tube and regular medication and has spent the majority of her life in hospital due to respiratory issues and cardiac arrests.

But a fundraising campaign that aims to fund sensory equipment and a defibrillator has raised more than £12,400 - just shy of its goal.

Ivy has been on the waiting list for a liver transplant for 18 months which doctors hope may help her condition and long-term prognosis.

Just 6 weeks ago, Ivy Grace received a donor's liver and went through an 11-hour surgery.

Her parents Carl and Philippa said:

“We hope this new liver will be a turning point for her and we are extremely grateful for any help.

“Ivy’s strength and determination is overwhelming and we are asking for help with setting up a sensory room for her to help with her recovery and especially in this isolation stage as she loves sensory equipment and hopefully will aid in her recovery.”

Carl and Philippa are looking to purchase a new defibrillator to be prepared if Ivy Grave has another cardiac arrest at home.

They will be posting updates on Ivy Grace's condition on their Just Giving page.

If you would like to donate to Ivy Grace for a sensory room and defibrillator, you can donate here.

More from Local News

M&S graffiti sparks police investigation in Harrogate

Police are investigating after graffiti appeared on fire doors outside Marks & Spencer in Harrogate.
Harrogate's dinosaur LEGO trail hailed as huge success

Harrogate's summer dinosaur LEGO trail has been hailed as a huge success after recording more than 40,000 QR code scans.
Knaresborough team raises over £3,300 for charity as part of Three Peaks challenge

A team of property professionals has taken on the Yorkshire Three Peaks Challenge to raise money for a Yorkshire children's charity.
Mayor brands lack of fixed speed cameras in North Yorkshire ‘shameful’

The Mayor of York and North Yorkshire says it is “shameful” that the county has no fixed speed cameras .
Appeal after cooking oil stolen from Harrogate restaurant

Police have released an image of a man they would like to speak to following the theft of cooking oil from a Harrogate restaurant.
Harrogate Homeless Project launches 35th anniversary appeal

Harrogate Homeless Project has launched a year-long fundraising campaign to mark its 35th anniversary.
Five more years in jail for fraudster who targeted Harrogate man

A fraudster who stole a vulnerable Harrogate man’s home has been jailed for a further five years after failing to pay a confiscation order.
Details revealed for return of Knaresborough Christmas market

Knaresborough Christmas Market will return this December with festive stalls, live music and a firework finale.
Harrogate's Thug Sandwich to close after sale falls through

Harrogate's Thug Sandwich has announced it is closing after a planned sale of the business fell through.
More than 100 children take part in first ever Knaresborough Junior Parkrun

Organisers of the first ever Conyngham Hall Junior Parkrun in Knaresborough on Sunday (20th September) have hailed it a success.
Ripon Races to round off season with beer festival

Ripon Racecourse will close its 2026 season this Saturday (26th September) with an afternoon of racing, beer and live music.
Harrogate volunteers give 180 hours to town centre clean-up

Volunteers have given 180 hours of their time to help spruce up Harrogate during four days of community action.
Harrogate women's friendship group celebrates first birthday

A group helping women make new friends in Harrogate has celebrated its first birthday after growing to more than 1,500 members.
North Yorkshire Police to use live facial recognition for first time

North Yorkshire Police will use live facial recognition technology for the first time this week.
Killinghall man given suspended sentence after strangling partner

A Killinghall man who repeatedly assaulted his partner has been given a suspended prison sentence and a 15-year restraining order.
Former Harrogate metal works site to be transformed into new homes

The first images of eight new townhouses being built on a former metal works site in Harrogate have been released.
Harrogate football clubs urged to apply for £20,000 equipment funding

Grassroots football clubs in Harrogate are being urged to apply for equipment vouchers through a new £20,000 fund.
Ripon teen who survived stroke raises £1,000 for hospital

A Ripon Grammar School student who had to learn to walk and talk again following a devastating stroke has completed his first half marathon.
Work begins on £5.8million Fountains Abbey project

Construction has officially started on a £5.8million project to improve visitor facilities at Fountains Abbey and Studley Royal.
Harrogate Town runners complete Great North Run for Community Foundation

Six runners have completed the Great North Run to raise money for Harrogate Town AFC Community Foundation.